Think I forgot about you? Things have been a little busy and I apologize for not updating in so long. Let's get caught up!
1/17 - Only 1 brady today and weighs 3 lbs. 8 oz. Hoping to start delayed feedings tomorrow.
1/18 - Aidan had a little set back today. He had lots of A's and B's and they are not sure if it's because he's not ready for the delayed feedings or infection. It was such a scary day. We sat by his bed and he just had no drive to breath. Blood tests didn't indicate infection but they started him on antibiotics as a precaution. He was put back on the cpap and had cultures done on his urine, blood and spinal fluid. They stopped feedings all together and put him on iv.
1/19 - Blood tests still do not show infection but one of the counts was on the high side and his crit was a little low so they did a blood transfusion. He's breathing a lot better and they are alternating him between the cpap and nasal cannula for 4 hours each. He weighs 3 lbs. 8.2 oz.
1/20 - Still alternating between the cpap and nasal cannula. Started Aidan back on milk, starting over but with delayed feedings but a very small amount.
1/21 - He is tolerating his feedings and increases. Aidan weighs 3 lbs. 9 oz.
1/22 - Increased Aidan's time on the nasal cannula to 6 hours at a time. Weighs 3 lbs. 11.2 oz.
1/23 - Aidan does well on the nasal cannula for the 6 hours. They increased his feeding to 20 cc's every 3 hours. He's gaining weight nicely, 3 lbs. 13.9 oz.
1/24 - Aidan didn't digest everything over night and threw up in the night. They dropped him back down to 10 cc's of milk. Grammy arrived tonight and we are spending the whole week in Baltimore to stay with Aidan.
1/25 - We all visited Aidan all day and he did so well. We all got to hold him. It was Daddy's and Grammy's first time. His feedings were increased to 15 cc's and he weighs 4 lbs 0.8 oz!!!
1/26 - We had such a great day. They increased feedings to 20 cc's. Only 1 brady today and seems to be tolerating feedings. Big gain today 4 lbs. 3.6 oz.
1/27 - Increased feedings to 25 cc's. Dr. Kapur went by and saw Aidan attack his pacifier and decided Aidan is ready to try breast feeding. He didn't do so well and didn't latch but hey, it was his 1st try! We visited him again around 9 pm to see him get a bath and the nurse let me try breast feeding again. As he was getting weighed (4lbs. 6 oz.) he threw up, and it was a lot! He threw up twice while we were there and again around 3 am. They stopped his feedings and put him on iv with TPN (nutrients), antibiotics and zantac. He may have an ulcer. X-ray and blood work doesn't look bad but still giving antibiotics again to be safe. Even through all of this he never dropped his heart rate and they took him off the nasal cannula! He is breathing all by himself!
1/28 - Aidan is still on iv. His xray in the morning didn't look wonderful, Dr. Kapur is keeping him on antibiotics and the iv. He is doing wonderful breathing on his own. He did receive lasix for water retention and with the lasix and throwing up he lost some weight, 3 lbs. 14 oz.
1/29 - Still on antibiotics and iv and still doing great breathing on his own, he has that mastered! Xray still had something not so perfect around his intestines so holding off today on the milk. Will start back tomorrow and Dr. Kapur would like me to try breast feeding again.
And here's the big news!!! Dr. Kapur thinks that Aidan will do well with feedings and thinks I should be here breast feeding as much as I can because there is a good chance Aidan will be coming home in a week to 10 days!!! The nurse warned me not to get too excited and not to write it in stone because it totally depends on Aidan and how well he handles his feedings. We are being cautiously optimistic. He should be in an open crib though in a couple of days. We are just very excited to even hear these words! I really wasn't expecting to have that talk until mid to late February.
So I guess it's time for me to get my act together and get the house ready. And to go on maternity leave! I'm very excited for Aidan and just trying to be here for him and encouraging him. He is such a sweet boy and I can't wait for him to come home!